Conversations with Lupus | Unscripted

CWL09_My Lupus and My Hair   I was asked about whether or not my hair came out while being diagnosed with lupus and how long my hair has been growing while locked. I'll be happy to answer your questions too! Feel free to leave me a voicemail here in Anchor or follow me on Instagram at @TheLupusLiar.

Get through it. It’s not about getting past it, it’s about getting through it.

Every now and then you have a moment. Here’s thoughts from a moment of admitting defeat. It happens!

Want to be contacted? Go to http://bit.ly/palsstudy to complete the interest form!  The Peer Approaches to Lupus Self-Management (PALS) Study Could Be Right For You!  This is a research study that connects women with lupus with a mentor who also has lupus. Your mentor will encourage you to learn how to manage your lupus better. Are you looking for guidance and support? Be a Mentee! Are you managing your lupus well and want to help other women do the same? Be a Mentor!   This study will investigate whether a peer mentoring program can help improve health-related quality of life, self-management, and disease activity in African American women with lupus. The study is sponsored by the Medical University of South Carolina (MUSC). The investigator in charge of this study is Dr. Edith Williams.  If interested and for more information Please Contact: Dr. Edith Williams at (843) 876-1519. Or via email at wiled@musc.edu.