EP17: Living and Dying in Peace with Joselin Linder

I was so blown away by the courage and wisdom of today’s guest.
 And just straight up fascinated by her personal story.
 Joselin Linder is caring an extremely rare gene that has
killed several members of her family for generations, and has
only recently begun to be understood.  


Joselin lives every day with an acute certainty of her own
death.  She watched her dad’s untimely, and painful, death
from this “mystery” illness, before digging into the science of
it herself.  Through her own investigation, and the
writing of her book The Family Gene, she’s helping to bring
awareness, research, and insight to the world of
genetics in the human experience.  


Her story takes us beyond scientific laboratories, and into our
own everyday understanding.  And, wow, it’s fascinating,
important, and hopeful.


Joselin Linder is a regular contributor to the NEW YORK POST,
whose work has also been featured on THIS AMERICAN LIFE,
MORNING EDITION and LIFE OF THE LAW. She spoke at the TEDX
GOWANUS event in Brooklyn in 2014, presenting for the first
time on the subject of her family gene and the deadly illness
to which it leads. Exclusive to just fourteen people, the story
of the gene is told in Linder’s new book, THE FAMILY GENE. She
lives in Brooklyn with her husband and two dogs.




We talk about:




Basic genetics and why it’s crucial that we all pay
attention

What it’s like to live as a “ticking time bomb,” with a
deadly gene

Death and dying, and how to manage the fear (and beauty)

Living your actual “bucket list” starting right
now

Genetics and ethics for all of us

When Jim Parsons (of Big Bang Theory) calls you about your
book…





For more on Joselin (and to read her book!), check
these out:




Grab her book, The Family Gene HERE

The Family Gene book trailer HERE

Her TEDX Talk  HERE   





Other Resources Mentioned:




How to Handle Stress During the Holidays (and always)

RadioLab on CRISPR Technology

The Immortal Life of Henrietta Lacks





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