Rare Care: Reducing Distress & Embracing Well-Being

Amanda Hull is from Suffolk in England. She and husband, Daniel,
have three boys; Joe, Sebby and Walter. Sebby is a 13-year-old
diagnosed with TANGO2 Deficiency Disorder. Amanda has worked as
an Educational Psychologist for the past 18 years, and discusses
strategies for increased well-being for rare disease caregivers.





About the TANGO2 Research Foundation: Our mission is to lead the
way in finding a cure for TANGO2 deficiency disorder.


To learn more, visit ⁠www.tango2research.org⁠. Find us on
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