Veronica and Tyson's Story
29 Minuten
Podcast
Podcaster
Beschreibung
vor 7 Monaten
Isabella Riezler, Science Communications Manager at the Chan
Zuckerberg Initiative (CZI), volunteered her time and talents to
support the TANGO2 Research Foundation by capturing the story of
this year's Ambassador Family: the Swetek-Jones family.In this
heartfelt video, Veronica and Tyson share their journey to find a
diagnosis for their daughter, Thea, and how that path led them to
create the TANGO2 Family Facebook group—a vital space offering
connection, information, and support for families impacted by
TANGO2 Deficiency Disorder (TDD) around the world.
_____________________________________________________________For
more information, go to: https://tango2research.org/Find us on
Facebook: / tango2research Find us on Twitter: / tango2research
Find us on Instagram: / tango2researchfoundation Find us on
LinkedIn: / tango2-research-foundation
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