Celia Chartres-Aris on Championing Disability Rights and Inclusion

EP 301 - Celia is a disabled founder and Investor, a multi-award
winning campaigner, lobbyist, researcher and policy designer,
advocating for the improvement of disability equity and
accessibility inclusivity.


We discuss Celia's life long journey with Loeys-Dietz syndrome,
and her personal and professional challenges. We talk about the
importance of representation, access to benefits, and inclusive
policies to advocate for a shift towards normalisation and
societal integration of disabled people.


We speak about the role of SMEs in fostering inclusivity and how
they can become more proactive. We also discuss the necessity for
businesses and government bodies to embrace inclusive practices -
to consult with disabled representatives for a more equitable and
accessible future.


Celia also tells us why ineffective consultation qualifies for
the big bin of bulls**t


Chapters:


00:00 BWB with Celia Chartres-Aris


01:17 Celia's Journey with Loeys Dietz Syndrome


10:10 Challenging Disability Stereotypes


10:47 The Intersection of Disability and Normality


26:24 The World of Work as a Disabled Individual


32:57 Exploring Accessibility and Inclusion Challenges


33:33 Workplace Adjustments and Discrimination


36:19 The Impact of COVID-19 on Work Flexibility


37:18 Unconscious Bias and Disability Representation


39:56 Experiences with Disability and Public Perception


48:20 The Importance of Disability Inclusion in Business


56:04 The Complexities of Disability Support Systems


59:20 Better Disability Awareness and Support


01:04:35 Exploring Toxic Positivity and Its Impact


01:05:06 The Realities of Living with Disabilities


01:06:06 Internalised Ableism and Its Effects


01:06:57 The Healthcare System and Social Perceptions


01:07:39 COVID-19: A Window into the World of Disabilities


01:09:00 Disability Equality and Understanding in Society


01:14:11 The Cost of Living with a Disability


01:20:19 The Importance of Representation


01:24:12 Personal Reflections and Advice for Founders


01:27:17 Quickfire Round: Getting to Know Celia


Useful links from Celia:


Access2Work


Training 


Disability Confident Employer Scheme


Accessible website widget


Disability as employers


businesswithoutbullshit.me


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