Episode 234 - Janet Marin, Disability Awareness Advocate

Janet Marin is an example of someone embracing themselves fully and
living their best life. If you follow her on Instagram
@jay_marinnn, you know that’s true. She is a T1D that also lives
with gastroparesis, vitiligo, neuropathy, fibromyalgia, and is open
about all of it along with her mental health journey. Rob and
Eritrea talk to her about all of that and more: * T1D diagnosis at
young age of six * Sick days and non-sick days when you live with
chronic illness * Being bilingual and the translator between your
doctors and your parents * Health equity and getting translators in
the room to serve education in the language needed * Autoimmune
responses like vitiligo * Gastroparesis diagnosis in 2017 and the
lack of information around it * Gastroparesis flare-ups and the
effects of malnourishment on her body * The support of the chronic
illness online community especially around having a feeding tube *
Advice for those newly diagnosed with a rare disease or a rare
disease alongside T1D * The isolation that you can feel in these
diagnoses or complications * Eradicating shame and guilt-causing
language especially from healthcare professionals We want to hear
from you. Send your questions, comments, queries, and general
diabetes concerns to THE MAILBAG at
mailbag@diabeticsdoingthings.com!