903. My child has just been diagnosed with AFM. What do I need to know?

903. My child has just been diagnosed with AFM. What do I need to know?

58 Minuten

Beschreibung

vor 4 Jahren

Dr. Sarah Hopkins and Sarah Stoney, MSW, LSW joined SRNA’s
Rebecca Whitney for this Ask the Expert podcast, in collaboration
with Centers for Disease Control (CDC). The topic is, “My child
was just diagnosed with AFM. What do I need to know?” Dr. Hopkins
begins by explaining the acute treatments typically administered
after an AFM diagnosis and what families should expect during
this time. She and Sarah Stoney discuss the importance of the
care team in supporting the family during both the acute phase
and long-term. Sarah Stoney describes the role of a social worker
in helping with applying for insurance coverage, creating 504
plans for school, and many other supportive actions. Finally, the
experts stress the role of child life specialists in helping a
child and their siblings understand their diagnosis and
participate in their care.

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