1205. Community Spotlight - Voices of SRNA Volunteers | Part 1

The “Community Spotlight” edition of the “Ask the Expert” podcast
series shares the stories of our community members. In this
episode, Alexandra Goulimi and Angela Jackson joined Lydia Dubose
of SRNA share their backgrounds and how they got involved with
volunteering for SRNA [00:01:43]. Alexandra and Angela discussed
their experiences with rare neuroimmune disorders and the support
they found through SRNA's programs [00:13:41]. They also shared
what they hope to see in the future related to rare neuroimmune
disorders and SRNA [00:22:53] and offered advice for anyone who
might be interested in getting involved [00:30:51].





Alexandra Goulimi was born in 1969 and lived in Germany until she
moved to Greece in 2011. She has a background in Human Resources
Development and holds a master’s degree in Sociology and a PhD in
Communications. In 2009 Alexandra met the Human Design System and
has been experimenting since then with making decisions guided by
her body’s intelligence. In 2017 Alexandra was diagnosed with
NMOSD. It was challenging to meet the initial shock and deal with
the symptoms. She has navigated her NMO-journey guided in her
decisions by her intuitive response. Alexandra’s experience of
NMO has led her to a profound understanding and a deeper love of
herself and life.





Angela Jackson has been a member of a book club for 20 years. She
is also a published author. Angela was a VP of Account Management
working for a software company responsible for Customer Success.
On February 27, 2019, she woke up with a numb left thigh. 12
hours later she was paralyzed from the waist down, diagnosed with
idiopathic transverse myelitis, and hospitalized. Her lifestyle
changed: acceptance of the diagnosis, therapy, limitations,
working from home, depending on others... Moving forward with a
positive outlook on life, Angela joined SRNA, serving as a Peer
Connect Leader and hosting the first Houston, Texas
Walk-Run-N-Roll. Angela has an awesome family. She is thankful
for loving and supportive family and friends.