S2: E16: The Power of Communication

S2: EP16:  ‘The Power of Communication’


On today’s show, I have the pleasure of talking with an
extraordinary young lady, 22 year old, Alex Guillot.


Alex is an invisible disability activist and patient with a
passion for education and social entrepreneurship. A born leader
with a driving devotion to help others, she shines when given the
opportunity to make a difference, especially in the lives of
young people.


She’s dealt with a condition called Amplified Musculoskeletal
Pain Syndrome (also known as AMPS) since she was about 6 years
old. A nerve condition which causes intense pain and functional
disability without evidence of tissue damage.


Alex has had her fair share of struggles and challenges. She grew
up with severe pain, general anxiety disorder and depression.
Struggled to make friends, was bullied for not being like others,
and was accused of lying by doctors who doubted her symptoms and
was unable to make a diagnosis. She was diagnosed with AMPS at
15.


Alex joined a Physical Therapy treatment program when she was 16
so her condition is largely under control, but she is still
dealing with new symptoms or reoccurring old ones.


She talks candidly about her life. The high’s and low’s. Offering
great advice throughout. Communication is her number one mantra.
Reaching out and having an outlet is key to building a strong
support system, especially for those who have an invisible
disability.


Writing her book Invisible
Conversations: How to Use
Communication to Support Those with Invisible
Disabilities was her first step into disability
activism, born from her desire to provide youth with these
conditions, the resources she did not have.


She is now on a mission to raise awareness. Her aim is to reach
those who are at the start of their diagnosis and treatment
journeys, but may not have found their communities online or
in-person. Her primary target audience is people with invisible
disabilities ages 13-30.


We talk about....


Life before diagnosis


Anxiety and Stress. How to overcome it.


Effective Communication


Her Activism journey


Useful resources


How society can do their bit


Finding inner strength and love


Plus much much more!


Tune in NOW. An episode not to be missed!


Alex’s contact details:


Instagram and Facebook @ alexandraguillot_author


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Thank you for listening x