Lucy McKay: Opening the door to rare diseases

"Every disease is a rare disease because it's a disease in you,
and it's interacting with you. So, this idea that there are rare
diseases, and there are common diseases, [is] kind of nonsense
because everything is rare in the context of a given human
being."


On today's episode of The G Word, our CEO, Chris Wigley, is
joined by Dr Lucy McKay, CEO and founder of Medics for Rare
Diseases. Medics for Rare Diseases is a grassroots charity
created to change the attitude towards rare diseases and changing
the ground for people with rare diseases. 


Together, they discuss Lucy's genomics background, delving into
her personal relationship to rare disease through her brother and
how a conversation at the dinner table with her parents opened
the door to many opportunities. They also cover the impact of
using terminology such as 'disease' and 'rare' towards patients
and in classrooms.