108. Behind the Scenes of Invisible: The Making of a Documentary about Fibromyalgia

Behind the Scenes of Invisible: The Making of a
Documentary about Fibromyalgia


 


Episode #108


On this episode of The Creative Soulpreneur, we explore the
intersection of health, creativity, and documentary filmmaking.
Our host, Nick, and guests Rose Harwood and Pallavi Sastry share
their experience with fibromyalgia, including the challenges of
diagnosis and navigating the wellness industry. We dive into the
making of Nick's documentary about fibromyalgia and the
importance of sharing stories about chronic, invisible illnesses.
We also discuss the similarities between fibromyalgia and Long
COVID and advocate for a more compassionate and less ableist
culture towards those dealing with health issues. Tune in to
learn more about this important topic and how creativity can be a
powerful tool for advocacy and education.


 


You'll Learn:


 


What is the main message of the episode? Answer: The main message
of the episode is that seeking a diagnosis for a health issue may
not always be helpful, and it's important to focus on managing
stress and improving emotional health to navigate a healthy
lifestyle.


 


What is fibromyalgia? Answer: Fibromyalgia is a condition that
affects the body and mind, causing chronic pain, fatigue, and
sleep problems. It is difficult to diagnose because there are no
concrete or blood tests for it, and there is a lot of confusion
surrounding it.


 


What are some simple steps to improving health? Answer: Improving
stress levels and sleep quality can be simple steps to improving
health.


 


Why is being too rigid with lifestyle change negative? Answer:
Being too rigid with lifestyle changes can negatively impact
mental health.


 


How can the wellness industry be dangerous?Answer: The wellness
industry can be dangerous because it promotes rigid rules and
labels, which can be detrimental to one's health.


 


Why is it important to take a look at stress and emotional health
to navigate a healthy lifestyle? Answer: It is important to take
a look at stress and emotional health to navigate a healthy
lifestyle because they can have a significant impact on physical
health.


 


What is Rose Harwood's experience with fibromyalgia? Answer: She
had experienced fibromyalgia in their teenage years and had
difficulty managing it, but she has since found ways to manage it
and believes that getting a label for it is not always necessary.


 


What inspired Nick to make a documentary about
fibromyalgia?Answer: Nick was approached by someone with an idea
to make a documentary about fibromyalgia, which appealed to him
as he was already at a point of wanting to expand their
creativity and open to new possibilities.


 


What is Long COVID and how does it relate to fibromyalgia?
Answer: Long COVID is a condition where people experience
symptoms of COVID-19 for weeks or months after the initial
infection. The episode suggests that there are similarities
between Long COVID and fibromyalgia, and watching the documentary
about fibromyalgia may provide education that applies to Long
COVID.


 


What is the healthcare system's role in the opioid epidemic?
Answer: The healthcare system has created a population of people
addicted to painkillers because they don't know what else to do.
The system has given a lot of painkillers but not much other
treatment, which has contributed to the opioid epidemic.


 


Our Guests:













https://www.instagram.com/pallavisastry/



















 









https://www.instagram.com/iamroseharwood/


 


 


Nick Demos is a Tony and Olivier Award
winning Broadway producer, documentary
filmmaker, conscious business coach and
manifestation expert With over 15 years of
teaching pranayama (breath work), yoga and
creativity as well as thirty years in the
entertainment industry, he has travelled
from the Tony Awards to ashrams and run a
multi-million dollar business in between.
Nick helps you clear blocks and tap into
your creative intuition so you can tell
your stories and manifest the business and
life of your dreams creating wealth and
impact.