Spotlight: Research, rooted in reality – The power of lived experience in scientific studies

How do individuals with lived experience and researchers come
together to co-design a scientific study? In this special episode
of Light O’Clock, we hear from Patrica Pelosi and Nomhle Nhlapho,
who have lived experience of bipolar disorder and have
contributed to shaping the HELIOS-BD study (more in our previous
episode). We also hear from Dr Amy Ferguson, who works closely
with the Lived Experience Advisory Panel of the HELIOS-BD study
and is the coordinator of the Circadian Mental Health Network.
Links and resources related to the episode’s
content:



More on the Circadian Mental Health Network
[https://www.circadianmentalhealth.org/]




Have your say! Survey on what you think researchers should
focus on when it comes to sleep, mental health and the body
clock:
[https://edinburgh.eu.qualtrics.com/jfe/form/SV_7P9EO2VGRjMQmAm]
NOTE: This survey is only open to people living in the UK.




How do you see light? AI-generated art depicting the inner
experience of people living with bipolar disorder
[https://www.heliosbd.com/gallery]


Timestamps

(00:00) Intro
(00:55) Introducing the guests
(04:36) What is the Circadian Mental Health Network?
(12:45) What does co-design look like for the HELIOS-BD
project?
(19:00) Creative aspects of the co-design process
(20:08) How collaboration helps lived experience individuals,
scientists, and participants
(23:14) Challenging aspects of co-design
(32:10) Outro
Contact

For feedback and questions, you can contact us
at: lightoclock@tuebingen.mpg.de


Follow us on social media to stay up to date with our episodes
and discover related content:


Instagram: https://www.instagram.com/lightoclockpodcast/


Website: https://www.tscnlab.org/podcast