Join Erin and me today as we talk about isolation in moms of
children with disabilities. We discuss the struggles of becoming
isolated, how to prevent isolation, or how to pull out of it
if you are already in it. If you would rather watch us on youtube,
to see our smiling faces. Notes from the show: Erin's post: Erin
shares where she was at feeling isolated. "Getting together
with other people, I can't do that, my kids have to have yes on
them at all times. When kids are involved I do';t have time to
relax and talk to people, especially if it is i someone else's
house. It is easier at my house, but is my house clean? Do I have
something to feed them? Often times I feel it's not worth it."
There are challenges about not being able to go somewhere and fully
participate, or inviting people to your home where it feels
like work. As a special needs parent, you have to think about every
single detail. Sometimes you feel isolated because it seems as
if people don't notice when you are missing. Sometimes it is easier
to look at what other people are not doing right, rather than
recognizing there is something we can do. Isolation can happen even
in conversations, because our life can be pretty different that it
makes us feel we have little in common with others. You can be
around people and feel alone. Birthday parties can be hard. Are our
kids invited? Does anyone show up at our kids' birthday parties?
Friendships are harder for our kids because of disability and
because of disability attitudes from other people. Most moms
with younger kids feel isolated, when you add disability to the
mix, sometimes it feels like you do not move out of that isolation
mode. So much is about children activities, and when our kids
cannot participate it isolates us. We have a role to play and we
can initiate. We are tired and have enough to worry about. But
sometimes, when a friendship is worth it, people need to be chased
a little bit. As you try and try, you learn together how to work as
a family. You figure out new ways trying to make things work.
Eventually, it can become a positive experience. But if we don't
try again, we will never get to that place. Even when trying is
hard, you have to be willing to put the energy and effort. In order
to participate in life sometimes you need to put yourself out
there. Our spouse is supposed to be our best friend. Marriage is
our most intimate connection, investing in the marriage helps us
have that strong bond. If the marriage is not doing well, it can
lead to the greatest isolation, where even within your own
home you feel isolated. Recommended Resources: For mental
health illness, there is (national Alliance on Mental Illness).
Joni and Friends . If you struggle with depression (or anxiety),
finding a counselor can be incredibly helpful, here are two
resources to help you find someone in your area as well as a
helpful article from Family Life. from Focus on the Family Article:
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share with a friend! And don't forget your freebie!
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