If you parent kids with disabilities and you are nondisabled,
chances are you don't know much about disability culture.
Personally, learning about my children's culture has been a journey
and a process, something I don't always get right and I am still
learning. In this episode of the Unexceptional Moms Podcast, Erin
and I talk to Marin Hann -- who is disabled -- about disability
culture and identity. We discuss how parents can build a bridge for
their disabled children to learn about their culture, a culture as
parents we do not belong to. Episode notes: Growing up as a
disabled child being raised by non-disabled parents meant Marin's
parents were not aware there was such a thing as "disability
culture" and neither was Marin until her teen years. But yeah, my
parents didn't know that there was a disabled culture, or what that
meant, either. And it makes sense, because I don't know how they
would have access to that prior. And they didn't really know
anything much about raising a disabled child till I showed up.
Marin Hann Marin explains internalized ableism as well as lateral
ableism (the "hierarchy" of disability, and how problematic that
is). And Erin and I express that even as parents of disabled kids,
we are often ableist. Although we do not come with an answer, we
tackle the topic of separating our children from their disability.
We also discuss "the great divide," or the divide that exists
between parents of disabled children and disabled adults. We
address the history of disability, and how little our culture
teaches about it. We discuss how watching the Netflix documentary,
Crip Camp, is a good place to start. Marin: Your child has a
disability, you think that there's not a cultural difference
between the two of you, you think that you're from the same
culture. Ellen: I did. Marin: Yeah. I did, too. I thought I was
from my parents’ culture as well. Erin: That's really profound
Marin and I think a lot of parents listening are gonna go, "Wow."
Marin tells us a little about the Disability Pride Movement, and
how important it is for parents to be a "bridge," connecting our
children to their community/culture. We talk about the role of
physical therapy as opposed to occupational therapy. The positives,
and the unintentional messages sent when we push disabled kids to
become as "non-disabled" as possible. This is especially
understandable as parents are pressured by the medical model of
disability. Transcript:
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