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Illness Outside The Box The Inside Story Podcast
Laure Wiggers on pacing and helping one another with ME/CFS

Laure Wiggers on pacing and helping one another with ME/CFS

Illness Outside The Box The Inside Story vor 3 Wochen

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1:00:16

My name is Laure Wiggers, I'm from the Netherlands and I got
ME/CFS, POTS and MCAS at the age of 13, maybe 14 years old. After
two blood tests my doctor told me to come back in a year if my
fatigue, headaches and stomach problems had not disappeared. I
asked my parents if I could quit school but that was not an
option. So I tried my best to keep my eyes open while I biked to
school and would sit with my head resting in my arms, unable to
pay attention. After a year my doctor could tell me that I've had
Pfeiffer at some point in my life but otherwise there was nothing
he could do for me. I took to google and asked for many referrals
to doctors who also, sadly, couldnt help me. At some point I even
started going to lots of different alternative medicine
practitioners, to no avail. In all this time I have managed to
finish an education in sports and movement. Eventhough I was
depressed I was somehow able to get to the last year of my
physiotherapy education. I only needed to do two half year
internships. Because of all the walking and standing I had to
push myself more than I ever had. I really wanted to finish my
education so if everyone told me that I was healthy than surely
it would be okay to push through the symptoms right? After months
of pushing myself, my ME/CFS progressed from light-mild all the
way to moderate-severe. The upside is that a doctor would finally
recognize my conditions when I was 26 years old. About 12 years
after getting sick. I was lucky enough to end up at the few
places in the Netherlands that can actualy help people with ME
and POTS without doing more damage. It is at this time that I
found out there is a lot of helpfull knowlage in patient groups.
It has gotten me from moderate-severe to moderate with almost no
symptoms and a decent quality of life. It has now become my hobby
and mission to bundle the knowledge of patients to give it back
to the community.https://meguides.wixsite.com/homeInformation on
MCAS triggers and medications on Mast cell activation. Under
health professional resources.
https://www.mastcellaction.org/resources-1Information on POTS/OR
and on dysautonomia: under the tab patients
https://dysautonomiainternational.org/page.php?ID=36