John F. Crowley is the Chairman and CEO of Amicus Therapeutics, a
publicly traded biotechnology company, which he helped to found
in 2005 and is now a 300+ person company in 22 countries. John's
involvement with biotechnology stems from the 1998 diagnosis of
two of his children with Pompe disease -- a severe and often
fatal neuromuscular disorder. In his drive to find a cure for
them, he left his job and became an entrepreneur as the
Co-founder, President, and CEO of Novazyme Pharmaceuticals in
2000, a biotech start-up conducting research on a new
experimental treatment for Pompe disease (which he credits as
ultimately saving his children's lives). In 2001, Novazyme was
acquired by Genzyme Corporation for nearly $200 million. John and
his family have been profiled on the front page of The Wall
Street Journal and are the subjects of a book by Pulitzer
prize-winning journalist Geeta Anand, The Cure: How a Father
Raised $100 Million -- and Bucked the Medical Establishment -- in
a Quest to Save His Children. The major motion picture
Extraordinary Measures, starring Brendan Fraser and Harrison
Ford, is inspired by the Crowley family journey. John is the
author of a personal memoir: Chasing Miracles: The Crowley Family
Journey of Strength, Hope, and Joy. John also served as a
commissioned intelligence officer in the U.S. Navy Reserve from
2005-2016. He was assigned to the Joint Special Operations
Command (JSOC) and is a veteran of the global war on terrorism,
with service in Afghanistan. He graduated with a B.S. in Foreign
Service from Georgetown University, and earned a J.D. from the
University of Notre Dame Law School and an M.B.A. from Harvard.
He previously served (2014-2016) as the National Chairman of the
Make-A-Wish Foundation of America and is a founding board member
of the Global Genes Project. John is a Henry Crown Fellow at The
Aspen Institute. This is an incredibly powerful episode. Enjoy!
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